One of my oldest and dearest friends has severe rheumetoid arthritis. She is 33 years old, and it set in at least 5 years ago. She had been a talented ballet dancer when she was young, having been asked to be a member of the Boston Ballet when she was graduating high school, but she opted instead to be a free wheeling hippie. She ended up walking around the world with Buddhist monks, driving her VW Bus across the country, travelling all over South America, and backpacking around Europe, among other things, in her 20s. She bought a tiny plot of land in a tiny town in Western MA and built a cabin on it with her own hands just before the arthritis really reared it’s head.
Realizing that she had what was probably a very serious medical issue, she decided to go to college so she would be employable off her feet. Her knees swelled to the point where she couldn’t put on pants most days. She was in extraordinary pain, and uninsured, facing a medical system that was as crumbled as her body. Still, she excelled in school, and ended up with a full scholarship to Smith College, getting a shot in her ass every month to keep the arthritis at bay. At this point, doctors couldn’t get a hard diagnosis, a part of the story I didn’t and still don’t completely comprehend. This post could be about our horrible health care system, but it’s not.
Her health care issues were ironed out recently, and insurance coverage returned. I guess the fact that she was a student complicated the issue. She applied for a fellowship that would enroll her in a total immersion program in Egypt, so she could further her studies in Arabic. The application process takes 9 months, and at the beginning of it she was uninsured so unable to get the medicine she needed to keep her knees from swelling. She was in a wheelchair. In the winter, she went to the doctor, crying, telling him that the only thing she wanted in the world was to be able to walk. If she didn’t have anything else, she said, she wanted to walk. He informed her that it would take time and patience, but that he thought that she could walk if she took a cocktail of drugs that required getting her blood tested every three weeks to assure that she was not in a state of toxicity. She agreed.
After three months, she was walking. At the same time, she found out that she was accepted to the program. Her doctor, however, refused to write her a three month prescription for her medications, saying that she required constant blood tests to assure her body was processing the cocktail properly. She had worked relentlessly at school, learning a language at the age of 33 that doesn’t even use her native alphabet, and had qualified for this program after only a year of study. Understandably, she was devastated. She once again begged the doctor, saying that she wanted to go to Egypt so badly, asking him to please let her, that she would be careful, and so on. He sat her down and said that she had sat in his office three months earlier, saying that all she wanted to do was walk. If she went to Egypt and entered toxicity, she may die. If she went without medication, she would not be walking when she left. He refused to advise that she go, and she ended up getting a local internship advocating for immigrants and their families in the Western MA area.
This story touches me because, obviously, this woman is my lifelong dear friend. It also touches me because I can relate to being bound by circumstance, begging for one basic need, and when it is met, to find another. At what point do we compromise? Can our compromises really set us free? When do we know that we have found the right one? I am going to write my next few posts about my search for employment, which is a basic need to flourish physically, emotionally, spiritually, and let us not fail to mention, financially. What circumstances warrant a compromise here? How can what we do in the world be what sets us free?


